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Leadfoot

The Hits Keep Coming

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Yesterday my wife was diagnosed with MS. Would appreciate any advice from anyone who has any insight to possible treatments to delay the progression. She's only 40, and has a long life ahead of her. I don't want her to spend it in a wheelchair if I can help it. Thanks to all.

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I have a niece about that age who was diagnosed about a year ago. She lives in a big city with a university hospital where she sees a specialist. She injects a drug that doesn't cure it but slows down the progress. It seems to be working. She's had a few bad days, but mostly she's holding steady and is still playing hockey. 

I was really sad to learn of her diagnosis, since I had a friend who passed away from MS. But I learned that nowadays far more MS people lead more or less normal lives for many years.

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Hi - so sorry to hear this  - many years ago I was involved in an MS Group through a fried - I know even back then (and even though it was very illegal) marijuana was used extensively and helped a lot. I honestly don't know in what context it was used, but i know many said it helped greatly.

Might be worth looking into

Nigel

 

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Posted (edited)

I'm truly sorry to hear that.   About 15 years ago a friend of mine was diagnosed (she was about 40 at the time), and she still leads a pretty normal life.  If I could offer any advice it would be to stay CLOSE to your medical people.  If you aren't near a big city it might be worth it to see a specialist.  The good thing about medical care with things like MS is because of the internet massive amounts of information is shared among doctors.  One last thing: if you need information, ask your doctor and NOT Google.  Your doctor knows your wife's case Google doesn't.  I wish you both the very best.

Edited by jude77
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Posted (edited)

Thanks to all of you for your advice. I've been reading about Clemastine. It's an antihistamine that was used in allergy medicines like Tavist and Dahist. A study was done a few years ago at the University of California in which the use of this allergy medicine was shown to reverse the demyelination process in nerves of  the brain. What's "funny" is,  shortly after this was discovered,  that particular form of antihistamine was no longer manufactured or sold in the US. That tells me that these people were on the right track, and when the Big Pharm/FDA found out about it, they put a clamp down on it. It's so much more lucrative to keep treating sick people than it is to cure them. You can still get Clemastine  in the UK. I found a site that sells it. I intend to at least try it. The only side effect is possible drowsiness, so why not??? I'll speak to her neurologist, of course. I can't promise I'm going to listen if she tells me no, though.  

Edited by Leadfoot

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My best friend person who I jam with weekly has MS. He's 55 or 56. He was diagnosed I think when he was around 30. If you want I can ask him to reach out to you.

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As another thought, Michelle Obama's dad had MS and she talks about it in her book Becoming. I loved that book. Tearful and belly laughs both.

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